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Here are several helpful tips from
other RSDers. Please feel free to adapat their tips to make your life easier.
- One day I was reading a book and I realized that I
had always loved to read and it was now something I used for distraction. I had also realized that reading didn't cause
me physical pain.~Erikka
- Have that one person you can trust and go to whenever your haing a
really bad day, find that one person who will listen to you when you feel as it there is nothing that will ever help
Don't let pain control
your life
Don't let people push
you beyond your limits.
Don't let uninformed people
get you down. ~ Melis
- Keep living your life no matter what happens. you can't let RSD get
the best of you; you just have to keep fighting it and some day you'll overcome it! even if it's one tiny achievement at a
time, they all add up, and before you know it, you'll be a new person: stronger, wiser, and a fighter! ~Kerri
- Stay informed and inform others. People will never understand what
we/you are ging through if we dont tell them. And, it really does feel better if more people have a faint understanding of
how I feel every day
~Kasie
- Find something to distract you. It helps if you do not think about
the pain
~Carrie
- For me, its my pets that are helping me survive RSD. I don't know
what I would do without them. They are always here for me, they know when I'm having a bad day, and they know to stay away
from certain parts of my body that hurt too much for them to touch me.
Also I use heat packs on the areas that aren't
too sensitive. It really helps the muscle spasms I get.
And I tell myself everyday when I don't want to feel this
anymore that one day this won't be as bad because there WILL BE some sort of treatment that will help me. ~Tabitha
- Use a rice pillow! You put it in the microwave and then use it like
a heating pad. They're easy to make, you just sew it up with a piece of fabric and put raw rice in it. It's nice for flare
ups in your hands because then you can wrap it around them
Active rest is proving to be a key thing for me. My worst flare ups
are in my foot and on bad days I walk with a cane instead of not walking. Also, for anyone who has RSD in one or both feet,
make sure your shoes provide good support and are comfortable, otherwise it's just gonna make things worse. If you have flat
feet make sure you are using inserts. you can get them at drugstores.
Make time to do stuff that's relaxing! On days
when the pain in my hands aren't too bad I play my guitar. Also, journaling has proved to be a lifesaver for me.
Consider a short haircut if you have pain in your
hands. I used to have hair that was several inches below my shoulders, but the pain levels in my hands would get so high that
dealing with it was this huge chore. Now I try to keep my hair at about chin length. This means I get to hold the hairdryer
for a shorter period of time, and washing and styling it is alot easier and alot less painful. ~ Kati

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| RSDers at the RSD in Motion Walk |
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