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Living with RSD

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Keep in mind that the information on these sites may not be consistent with one another. Research of RSD is a very recent thing; there is so much new information that research is discovering, and so much yet to be discovered.

Medical Articles:
 
Reflex Sympathetic Dystrophy Syndrome -National Institute of Nuerological Disorders and Stroke
 
CRPS -Beth Isreal Medical Center
 
Fact sheet -Refkex Sympathetic Dystrophy Syndrome Association
 
New Study Finds Nerve Damage in CRPS- Reflex Sympathetic Dystrophy Syndrome Association
 
Nerve Damage- International Reflex Sympathetic Dystrophy Foundation
 
 
http://rsds.org/2/library/article_archive/pop/rsd%20and%20adolscents.pdf - Reflex Sympathetic Dystrophy in Adolescents: Lessons for Adults, RSDSA
 
http://www.mayoclinic.com/health/rebound-headaches/DS00613: The over-use of pain medications can cause these Headaches
 
Emotional Consequences of RSD:
 
Emotional Consequences of RSD - Reflex Sympathetic Dystrophy Foundation
 
http://www.rsdhope.org/Showpage.asp?PAGE_ID=145&PGCT_ID=4603 - Counseling Would Help Relieve Chronic Pain, American RSDHope 
 
http://www.rsdhope.org/Showpage.asp?PAGE_ID=145&PGCT_ID=4399 - Living With Pain That Won't Go Away, American RSDHope
 
http://www.rsdhope.org/Showpage.asp?PAGE_ID=143&PGCT_ID=3674 - Getting Comfortable with your RSD, American RSDHope
 
Living With RSD:
 
http://rsds.org/4/resources/pdf/helping_children.pdf - Helping Childeren Succeed In School, RSDSA 
 
 
 
http://www.rsdhope.org/Showpage.asp?PAGE_ID=131&PGCT_ID=4661 - Singing in Spite of Pain, American RSDHope
 
 
For Caregivers, Friends and Family:
 
 
Caregivers often neglect their own health- American RSD Hope Organization

http://www.caringbridge.org - Caringbridge is a free website to keep families connected and informed during illness.
 
http://www.carepages.com - Carepages is a online community to connect families during illness and injury
 
http://www.medicalhomeinfo.org/CareNoteBook/ - Provided by the American Academy of Pediatrics, this website allows you to put together a carebook of your child's medical information.  
 
http://rsds.org/4/resources/out_work/out_of_work_2.html - In Pain, Out of Work, and Can't Pay the Bills, RSDSA 
 
http://rsds.org/4/resources/specialists_websites.html - Finding A CRPS Specialist, RSDSA
 
Living in Pain:
 
 
Breathing exercises- How to Cope with pain
 
http://rsds.org/4/resources/chronic_pain_ER_.html - Chronic Pain and the ER Visit, RSDSA
 
http://rsds.org/4/resources/hospital_protocol.html - Hospital Protical for RSD patients, RSDSA 
 
Suicide Prevention:
 
If you are in a crisis please call: 1-800-Suicide or (800)-744-2433 or contact The National Suicide Prevention Lifeline at 800-273-TALK
 
http://www.rsds.org/4/stories/suicide.html - The Taboo of Suicide, RSDSA
 
http://www.rsds.org/4/stories/suicide-2.html - Suicide: Tips for Prevention, RSDSA  
 
Books:
 
Living With RSDS Your Guide To Coing With RSDS by: Linda Lang and Peter Moskovitz M.D- If you or someone you love suffers from Reflex Sympathetic Dystrophy Syndrome (RSDS) also known as complex regional pain syndrome, this new book offers in-depth medical information, techniques, and strategies to help you deal with the syndrome's painful symptoms and psychological effects.
 
 
Power Through Pain: Living With Reflex Neurovascular Dystrophy
by: Elizabeth J Elster -  Power Through Pain is a moving, inspiring memoir of Elizabeth Elster and her family's three and a half year struggle to find a solution to Elizabeth's intense daily pain. Eventually, after seeing twenty physicians, ingesting countless medications, and enduring many invasive medical procedures, the Elster family's search ends in success. Too often, individuals in chronic pain become isolated and embittered. This is a wonderful account of an individual's courage, determination and hope that will help other families struggling with rare chronic illnesses weave a path through a fragmented medical system that treats symptoms yet rarely heals." James W. Broatch, MSW, Executive Director, RSDSA
 
Positive Options For RSD Self Help And Treatment by: Elena Juris
 
Lessons From The Washing Machine by: Ruth L.S. Miller -  Because of a knee injury, Ruth has developed a disorder known as Reflex Sympathetic Dystrophy (RSD). Complex Regional Pain Syndrome Type I (CRPS - I) is the newer term for the disorder. The hypothetical rationale for RSD is a nerve becomes damaged (could be from something as simple as a splinter), does not repair appropriately, and, therefore, causes excruciating chronic pain. The pain in turn causes the body to compensate resulting in skin, bone, muscle, and more nerve damage. Ruth discusses the diagnosis, treatments, coping with excruciating pain, and dealing with the losses associated with RSD. She also talks about the ef-fects chronic pain has had on her marriage and her faith in God
 
** All Books Listed Can Be Found At www.Amazon.com **

"A heart that has lost the will to sing, is like a butterfly with a broken wing."  -Harriette B. McCormick