Living with RSD

Living with RSD

Keep in mind that the information on these sites may not be consistent with one another. Research of RSD is a very recent thing; there is so much new information that research is discovering, and so much yet to be discovered.

Medical Articles:

Reflex Sympathetic Dystrophy Syndrome -National Institute of Nuerological Disorders and Stroke

CRPS -Beth Isreal Medical Center

Fact sheet -Refkex Sympathetic Dystrophy Syndrome Association

New Study Finds Nerve Damage in CRPS- Reflex Sympathetic Dystrophy Syndrome Association

Nerve Damage- International Reflex Sympathetic Dystrophy Foundation

http://rsds.org/2/library/article_archive/pop/Olsson_Meyerson_Linderoth.pdf - Spinal Cord Stimulation in Adolescents, RSDSA

http://rsds.org/2/library/article_archive/pop/rsd%20and%20adolscents.pdf - Reflex Sympathetic Dystrophy in Adolescents: Lessons for Adults, RSDSA

http://www.mayoclinic.com/health/rebound-headaches/DS00613: The over-use of pain medications can cause these Headaches

Emotional Consequences of RSD:

Emotional Consequences of RSD - Reflex Sympathetic Dystrophy Foundation

http://www.rsdhope.org/Showpage.asp?PAGE_ID=145&PGCT_ID=4603 - Counseling Would Help Relieve Chronic Pain, American RSDHope

http://www.rsdhope.org/Showpage.asp?PAGE_ID=145&PGCT_ID=4399 - Living With Pain That Won't Go Away, American RSDHope

http://www.rsdhope.org/Showpage.asp?PAGE_ID=143&PGCT_ID=3674 - Getting Comfortable with your RSD, American RSDHope

Living With RSD:

http://rsds.org/4/resources/pdf/helping_children.pdf - Helping Childeren Succeed In School, RSDSA

Overcoming RSD: Remission Stories -RSDescape

CRPS/RSD and Sport Injuries: Prevention is the Name of the Game - RSDSA

http://www.rsdhope.org/Showpage.asp?PAGE_ID=131&PGCT_ID=4661 - Singing in Spite of Pain, American RSDHope

http://www.rsdhope.org/Showpage.asp?PAGE_ID=131&PGCT_ID=4518 - Going to Pains to Meet a Hero

For Caregivers, Friends and Family:

An Anonymous Letter-RSD Escape

Caregivers often neglect their own health- American RSD Hope Organization

http://www.caringbridge.org - Caringbridge is a free website to keep families connected and informed during illness.

http://www.carepages.com - Carepages is a online community to connect families during illness and injury

http://www.medicalhomeinfo.org/CareNoteBook/ - Provided by the American Academy of Pediatrics, this website allows you to put together a carebook of your child's medical information.

http://rsds.org/4/resources/out_work/out_of_work_2.html - In Pain, Out of Work, and Can't Pay the Bills, RSDSA

http://rsds.org/4/resources/specialists_websites.html - Finding A CRPS Specialist, RSDSA

Living in Pain:

All About RSD Pain- RSD Escape

Breathing exercises- How to Cope with pain

http://rsds.org/4/resources/chronic_pain_ER_.html - Chronic Pain and the ER Visit, RSDSA

http://rsds.org/4/resources/hospital_protocol.html - Hospital Protical for RSD patients, RSDSA

Suicide Prevention:

If you are in a crisis please call: 1-800-Suicide or (800)-744-2433 or contact The National Suicide Prevention Lifeline at 800-273-TALK

http://www.rsds.org/4/stories/suicide.html - The Taboo of Suicide, RSDSA

http://www.rsds.org/4/stories/suicide-2.html - Suicide: Tips for Prevention, RSDSA

Books:

Living With RSDS Your Guide To Coing With RSDS by: Linda Lang and Peter Moskovitz M.D- If you or someone you love suffers from Reflex Sympathetic Dystrophy Syndrome (RSDS) also known as complex regional pain syndrome, this new book offers in-depth medical information, techniques, and strategies to help you deal with the syndrome's painful symptoms and psychological effects.

Power Through Pain: Living With Reflex Neurovascular Dystrophy

by: Elizabeth J Elster - Power Through Pain is a moving, inspiring memoir of Elizabeth Elster and her family's three and a half year struggle to find a solution to Elizabeth's intense daily pain. Eventually, after seeing twenty physicians, ingesting countless medications, and enduring many invasive medical procedures, the Elster family's search ends in success. Too often, individuals in chronic pain become isolated and embittered. This is a wonderful account of an individual's courage, determination and hope that will help other families struggling with rare chronic illnesses weave a path through a fragmented medical system that treats symptoms yet rarely heals." James W. Broatch, MSW, Executive Director, RSDSA

Positive Options For RSD Self Help And Treatment by: Elena Juris

Lessons From The Washing Machine by: Ruth L.S. Miller - Because of a knee injury, Ruth has developed a disorder known as Reflex Sympathetic Dystrophy (RSD). Complex Regional Pain Syndrome Type I (CRPS - I) is the newer term for the disorder. The hypothetical rationale for RSD is a nerve becomes damaged (could be from something as simple as a splinter), does not repair appropriately, and, therefore, causes excruciating chronic pain. The pain in turn causes the body to compensate resulting in skin, bone, muscle, and more nerve damage. Ruth discusses the diagnosis, treatments, coping with excruciating pain, and dealing with the losses associated with RSD. She also talks about the ef-fects chronic pain has had on her marriage and her faith in God

** All Books Listed Can Be Found At www.Amazon.com **

"A heart that has lost the will to sing, is like a butterfly with a broken wing." -Harriette B. McCormick